Sue Swenson

Perhaps one internal barrier is the active exclusion of family caregivers/supported/assistants, many of whom are mothers, wives, sisters and daughters of disabled people.  Too many policies ( or lack of them) force disabled people to rely on familial support but it is just taken for granted, with no consultation with the women involved, and usually they are way too busy or too tired to be consulted anyway. Or to advocate or even vote.  And yet many disabled people repeat that family members are not rights holders under the CRPD. But are they not human? Surely they are rights holders somewhere.  Love should not exact such a toll.