- This topic has 22 replies, 3 voices, and was last updated 4 months, 1 week ago by
Md. Anisuzzaman.
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Up::1
To move policy — especially in a useful direction — we need a strong evidence base. This is needed to highlight the challenges we face, to understand them better, and to craft policies and programs to address them. Some areas get a lot of attention, but some don’t. What are the questions you would like research to answer that you think are not be addressed sufficiently? Either thematic areas, or even specific questions within a thematic area?
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Zachary Borodkin
Up::0The most under-researched topic concerning inclusive policies is in cognitive disabilities. People process and relay information differently and researching this topic can result in increased availability of resources to students and employees who have cognitive disabilities.
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Up::0
I agree Zachary that when people think about disability (who are outside the field) they often don’t think about people with mental disabilities — even psychosocial more than cognitive, I think. But what specifically do you think we need to know more of about that group?
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Andrew Lange
Up::0Great question and I agree as well, that people who are neurodivergent are often left out of the disability category when we think about disability and consequently, in developing policy solutions and targeted aid. While people with different types of disabilities have different needs, people with these “invisible disabilities” do seem to be overlooked, and that disability policy is more supportive of those with more obvious types of disabilities. Research on barriers to equal access/participation of people who with various neurodivergent disorders and in different sectors (education, employment, transportation, healthcare, housing, etc.), could provide important support to expand existing policy as well as create new, needs-based policy solutions.
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Hannah Njeri Maina
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I agree, Hannah, that we need some evidence based good examples of getting youth with disabilities into the work force. There has been a ton of research showing the employment gap between people with and without disabilities, but not a lot of evidence on what works to correct that.
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Holly
Up::1Availability of accommodation resources globally (e.g., sign language interpreters, orientation & mobility specialists).
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Up::0
Interesting question indeed and thanks Dan for framing it. It is now an established fact that in the context of developing countries , government ownership is critical for disability inclusion. Evidence is absolutely needed to make development inclusive. Often there is evidence on hand but still policies & programs crafted on the basis of evidence fails to make an impact in the lives of persons w disabilities. This largely due to poor implementation and lack of commitment on the part of the government . We need more evidence /research on why some governments fail to deliver and why some govts are effective . What factors ensure commitment on the part of the officials who are responsible to ensure inclusive development. Ultimately it is not systems that drive systems but it is individuals who drive the system as rightly said by UNDP Administrator Achim Steiner .
There are some good practices of inclusive governance that could be further researched for replication in other developing countries . Speaking recently at a seminar organized on the occasion of the Human Rights Day by the EU Singapore delegation on human rights of persons w disabilities in ASEAN region, I had the opportunity to talk about the bi-directional link between rule of law and disability inclusion . It will be indeed interesting to gather evidence on how governance and rule of law have impacted disability inclusion.
Knowing well the importance of the role of the parliaments in promoting national development , we need research on parliamentary oversight on issues related to persons w disabilities in developing countries and do parliaments debate on disability issues and how much of the parliamentary time is dedicated to citizens with disabilities is yet another area of interest to collect evidence .
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Selena
Up::0Hi all, from my previous experience, I found that DI in peace and security sector (with exception of humanitarian assistance) is relatively unexplored. Similarly, little or no OPDs are involved in this sector.
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AP
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Cucu Saidah
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Up::0
AP – What forms of intersectionality would you focus on, besides gender?
Cucu — Leadership of persons with disabilities is clearly very important, but what exactly would you like research to show? The ways in which it impacts policy?
Selena — You’re right in that I can’t recall seeing anything that is not directly related to humanitarian assistance. What questions about this would you like answered?
Bagival — in some places, we see disability rights movements having an impact on governance more than in others. What I’ve always wanted to know, was what were the factors (or strategies) that made advocacy efforts more successful — and to what extent are those factors context specific or more universal.
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Up::0
To me there are limited evidence that highlights the importance of involvement of persons with disabilities in the social accountability processes and the space available within the program and policies for persons with disabilities to participate in the social audit / accountability process built within the program or policies. It will worthwhile to invest in studies that understand and documents the best practices in this area.
The second suggestion is to understand how academic researchers / research studies link themselves with the experiential experts and the need on the ground while framing their research. I constantly feel a disconnect.
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Jerry Mindes
Up::0Research about children and adults living in segregated settings. Their life expectancy? Their quality of life? Their exposure to education and job training opportunities? The extent to which national governments and international agencies seek to support their independent living in community settings and their inclusion in society?
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Wanda Muñoz
Up::0Great question and discussion.
In my view, one of the most under-researched questions is how sectoral
policies and public services (in different sectors) should effectively budget for inclusion of persons with disabilities. And what does fiscal justice from a feminist, intersectional, disability perspective?
Analyzing national budgets from this perspective yields interesting results
that are otherwise invisible.
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Nadia Bhayat
Up::0Aging and intergenerational living. The number of people over 60 exceeds children under 5 years of age internationally. We are not addressing this in any coordinated way. We need multidisciplinary guidelines to ensure that the aging can maintain quality of life for as long as possible. The social and economic impact if not addressed will be explosive.
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Up::0
Thanks for this discussion.
Meenakshi — I feel your pain with the disconnect between academic researchers and experiential experts. I do believe this is somewhat better than in years past, but still a long way to go. Here is one article that documents the usefulness of parent-researchers on autism research
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Up::0
Jerry — I hadn’t thought of this. A lot written on deinstitutionalization, but not on the lives of people in those settings. At least that I’m aware of.
Wanda — Thanks for your comment. Have you seen the CIP resources on inclusive budget analysis and advocacy? This is something we are working on. You can also go to our data page and look at the budget data visualization project we have started.
Nadia — I agree the aging of the world’s population and the expected increase in disability rates is a big issue. The UN Statistical Commission’s Titchfield Group on Aging is working on how to collect relevant data. You can learn about the group here: https://unstats.un.org/unsd/methodology/citygroups/Titchfield.cshtml
CIP wrote a paper for them on indicators of autonomy for an ageing population at
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Karen
Up::0I would be keen to learn more about coping strategies that households with persons with disabilities apply in order to support their loved ones. It would be good to also examine the replicability of these strategies- and how it can be recognized in policy. By coping strategies, I believe it will expose us to interact more with caregivers and understand things from their context.
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Karen A
Up::0I agree about intersectionality. In an attempt of a response to AP, what kind to focus on beside gender: that is exactly the point. I feel, too often, as practitioners we decide – consciously or not – for persons with
disabilities what is their dominant or most important identity when disability may be one factor that may be more or less important when it intersects with other identity factors and in different circumstances.
We need to be more open, less presumptuous. This might help with the whole dilemma of targeting, especially in mainstream settings.
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Md. Anisuzzaman
Up::0I think that special needs of persons with intellectual disability, learning disability, mental health leading to disability, neurological disorders, autism spectrum disorder, down’s syndrome, colour vision deficiency (CVD) need to be addressed in the inclusive policy. Sometime, we forget the special need of people with mild disabilities, chronic health conditions, rare diseases for inclusive policies.
To meet the special needs of persons with CVD, accessibility is an important area to address in the universal education policy, inclusive curriculum design, inclusive education programme to ensure education for all. Although the people with CVD have potentials to take most of the jobs like others if their needs are addressed by ensuring reasonable adjustment from recruitment to provision of social protection support for their retention.
I feel that more investment is required to identify the exact needs of persons with disabilities irrespective of gender, age, degrees, categories, geographical coverage and vulnerability. There are ample opportunities to explore more areas as disability is an evolving process and it is beyond diversity. The areas of special need can’t be generalised like other areas of intersectionality.
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